Dying Boy in Sleepy Eye: Parents Withholds Needed Chemotherapy From Boy on Religious Grounds

thumb_praying_handsDaniel Hauser, 13, is dying of cancer and needs chemotherapy. However, his mother, Colleen Hauser of Sleepy Eye, Minnesota, is in court this week fighting the treatment on religious grounds. Hauser has Hodgkin’s lymphoma, but the family is against modern treatment on religious grounds and believes in healing cancer with herbs and vitamins . . . and prayer.

Colleen Hauser says that she learned about alternative healing techniques “on the Internet.”

She insists on the treatment (and says that her son agrees) despite the fact that (without treatment) his survival chances will drop to 5 percent.
Natural-health advocates have been at the court to support the family and Dan Zwakman, a member of the Nemenhah religious group to which family belongs, has spoken for the family. He has emphasized the group’s motto: “our religion is our medicine.”

This is an all too familiar case of parents putting their children a great risk due to religious beliefs — forcing courts to intervene. Unfortunately, many of these cases do not involve the courts until after the death of the child in the form of criminal charges against the parents, here.

For the full story, click here.

30 Responses to “Dying Boy in Sleepy Eye: Parents Withholds Needed Chemotherapy From Boy on Religious Grounds”


  1. 1 Anonymously Yourss 1, May 10, 2009 at 6:47 am

    Maybe we should pray for the right thing to happen for this child. Whatever that maybe.

  2. 2 mespo727272 1, May 10, 2009 at 7:54 am

    It has always been a curiosity to me that you have a state-issued license (and demonstrate the required proficiency) to operate a car, but to have and raise a child requires no sense at all. Proof again we’ve got it backwards.

  3. 3 Mike Spindell 1, May 10, 2009 at 9:37 am

    Mespo,
    While licensed parenthood will never fly, it is a damned good idea. I do believe that creative imagery can have an effect on cancer and that could be called prayer by another name. The woman who ran my Psychotherapeutic Training Institute had inoperable stomach cancer more than 30 years ago. While she received the best state of the art medical care, her husband was a doctor on staff at Columbia Presbyterian, she also had other therapists with her around the clock leading her in creative imagery exercises. Such as imagining the battle in her body against the cancer and supervising the war against it. She survived and felt that some of that was due to the imagery work. I myself do it with my heart, but at the same time I see the best Doctors I can and follow their instructions and treatment.

    So I do think that whatever you call it imagery, meditation and prayer can be helpful. The trouble with these and other parents of their ilk is that they are too enraptured in their
    beliefs to see the clear and needed alternatives. The court should step in, or these people if they are self aware enough, are in for a lifetime of sadness.

  4. 4 Bron98 1, May 10, 2009 at 10:24 am

    Does the state have a right to intervene?

    I say no, isn’t this a case of separation of church and state? No matter how stupid this may be isn’t it up to the individual to decide what is right for their family?

    What will be next, telling parents they cant feed their children cookies and potato chips in the name of universal health care?

    I don’t agree with what the parents are doing but it is up to them is it not?

    Also there are many alternatives to chemotherapy but then that gets into a whole other issue about the cancer “lobby”. So these parents may be doing the right thing actually. There was a case of a young man a few years ago in either NC or VA that refused chemo because it made him very sick and his parents rejected further treatment and treated him with non-traditional methods and the last I heard he was doing very well. So these parents are not totally out in left field and the state has no right to make this type of decision for them.

    On the one hand you all are for individual rights and on the other you are not, which is it? Individual rights or state control of our lives, you cant have it both ways. It is either one way or the other. We are either a free people in charge of our individual destinies or we are wards of the state, subject to the artful fancies of faceless bureaucrats with no responsibility for their thoughts or actions.

    In my conservative handbook individual rights take priority. (and yes I understand that my rights end at your property line and no I am not an anarchis but a limited goevernment type.)

  5. 5 Mike Spindell 1, May 10, 2009 at 10:31 am

    “In my conservative handbook individual rights take priority. (and yes I understand that my rights end at your property line and no I am not an anarchis but a limited goevernment type.)”

    Bron,
    Here’s the problem I have with your formulation: The kid is 13. If his parents were beating him with a whip the government would and should have the right to step in. Anyone who reaches the age considered legally mature should not be compelled to take any treatment. When you’re dealing with a minor, I consider this to be child abuse.

  6. 6 Bron98 1, May 10, 2009 at 10:41 am

    MikeS:

    maybe the chemo is child abuse. There are other methods for treating cancer and from what I have read they are effective. If this is a determination by the courts as to what treatment is required then I disagree with you. If the parents are not under the care of a physician and are going about this willy nilly then I agree with you.

    The courts do not have the right to tell an individual they may not seek alternative treatments.

  7. 7 Mike Spindell 1, May 10, 2009 at 11:27 am

    “She said they prefer natural remedies such as herbs and vitamins.”

    “He argued that this is a case about religious freedom, noting that the group’s motto is “our religion is our medicine.”

    Bron,
    Those two quotes are from the original story. She (the mother)found those herbs and vitamins on the Internet. The second quote though tells it all. Their method is not alternative/unorthodox treatment, it is prayer. If my kid had been given a 5% chance of survival without chemo, I’m giving it chemo, whatever my religious beliefs are. This is child abuse and I believe that the Courts must step in to prevent it.

    Christian Science and their ilk was, is and always has been quackery of the most pernicious sort. If you’re an adult and you want to play that game, be my guest. If you’re a 13 year old kid with crazy parents, I’m for them being compelled to do the right thing.

    You might know from other posts that I am not an enemy of alternative medicine and there is much there that I think has merit. I even use some herbal remedies. However, as one with disability and a wife who scours the Internet trying to keep me alive, let me say that there is also a lot of BS out there, that simply represents the long time American scam of Patent Medicines.

  8. 8 lottakatz 1, May 10, 2009 at 6:49 pm

    The problem Bron is that the patient is not a legal individual. He is also not entirely the property of his parents. If it was one of the parents making a decision about their own care there wouldn’t be a court case. I too believe in individual rights and know exactly how I’d like my life to end (mobility and awareness willing) when that time comes but I wouldn’t presume to impose that or withhold it from a sick relative, it’s a matter of individual rights.

    If the son lives to the age of emancipation with conventional treatment and then wants to stop that treatment it’s his right as a legal individual. Treating him is actually for the state to preserve his opportunity to make an individual decision.
    ——————

    Mike, Way back I read a neat little short story by Norman Spinrad named ‘Carcinoma Angels’ in a compilation put together by Harlen Ellison in 1967. The full text is at:
    http://www.scifi.com/scifiction/classics/classics_archive/spinrad/spinrad1.html
    and it plays nicely into your ‘imaging’ therapy remarks. It kinda’ falls into the ‘be careful what you as for’ category of writing but it was ‘67 after all.

  9. 9 Mike Spindell 1, May 11, 2009 at 1:31 am

    LK,
    Magnificent story!. I hadn’t thought about Spinrad in years.
    Easy to see why Ellison selected it given his proclivities for the weird. Both Ellison and Spinrad had been guests on NYC’s
    Long John Nebel radio show. Asimov and L.Ron Hubbard also appeared a few times. Two of his regulars guests and friend were Lester Del Rey and Fred Pohl. Reading Spinrad again, late at night, waiting to pick up friends coming in on a Red Eye, brought back many pleasant memories of my youth. Spinrad’s take on creative visualization was a droll gem.

  10. 10 mespo727272 1, May 11, 2009 at 6:45 am

    Bron98:

    “The courts do not have the right to tell an individual they may not seek alternative treatments.”

    *******************

    Wonder if you’d feel the same way if the alternate treatment for the child was a Witch Doctor?

  11. 11 Bron98 1, May 11, 2009 at 6:48 am

    lottakatz:

    As I stated above if the child is under the supervision of a physcian and this is a case of the court compelling the parents to adopt one form of treatment over another then it is a violation of rights. The courts do not (yet) and should not have the power to choose doctors and treatments for an individual. There are effective alternative cancer treatments and it is up to the individual to take those decisions and it is up to the parents to take the decision for a minor.

    When the religous right takes over and you are compelled to carry a child to term because it is best for the child please remember this post.

  12. 12 Bron98 1, May 11, 2009 at 6:49 am

    Mespo:

    how would you feel if your daughter was forced to carry an unwanted pregnancy to term because it was in the best interest of the child?

  13. 13 Bron98 1, May 11, 2009 at 6:52 am

    Mespo:

    I think we are talking about licensed physicians, last I heard we don’t license witch doctors in this country at least not yet. Although who knows maybe in a few years so we can bring health care costs under control. I think witch doctors would work for a couple of chickens or a goat.

  14. 14 mespo727272 1, May 11, 2009 at 6:55 am

    If it were the law, I’d worry but it isn’t. Here the parents are doing nothing more than the Witch Doctor would do, and the child suffers. It’s the old canard about letting the family decide what’s best for the child. It only works if the family is responsible. When they’re not, society steps in to protect the child. It’s like arguing that I have the right to leave my child in a hot car during the summer with the windows up because I deem it acceptable. Sorry your rights end at the safety of your child who cannot decide for himself.

  15. 15 mespo727272 1, May 11, 2009 at 6:56 am

    Bron98:

    In this case, we’re not talking physicians, we’re talking religion. “Dan Zwakman, a member of the Nemenhah religious group to which family belongs, has spoken for the family. He has emphasized the group’s motto: “our religion is our medicine.”

  16. 16 Bron98 1, May 11, 2009 at 7:08 am

    Mespo:

    Then the parents are very misguided/ignorant, but should the courts step in? And do they have a right to interfere?

    If the government gets into the business of saving stupid people from themselves it wont have time to do anything else.

  17. 17 Bron98 1, May 11, 2009 at 7:14 am

    Mespo:

    Obviously leaving a child in a hot car is deleterious to the childs health. But so is feeding a child too many sweets albeit in different ways but we dont have the cookie police (yet).

    What if they went to a doctor and he approved their regime? Would you be satisfied then?

  18. 18 mespo727272 1, May 11, 2009 at 7:43 am

    BRON98:

    “What if they went to a doctor and he approved their regime? Would you be satisfied then?”

    ************

    If they did that it would meet the test of reasonableness and that is precisely why we license physicians and hold them accountable for their actions. Parents are their child’s guardians not their keepers. BTW do you honestly think any MD would agree with this treatment plan?

  19. 19 Bron98 1, May 11, 2009 at 8:17 am

    Mespo:

    I have no idea as we are not given the full plan dosages, types of supplements etc.

    I have read works by doctors that are not in the mainstream of cancer treatments that do accept high doses of fruits and vegetables and certain supplements as legitimate means of treating cancer.

    I have also read that all spontaneous remissions of cancer can be traced to a very high fever on the level of about 105 F and that German doctors use this form of treatment.

    I have a good deal of contact with the legal profession because my daughter has CF and they are very hide bound and one way. For example it took many years for nutrition to be an accepted way to prevent certain diseases. Or for the food pyramid to be revamped.

    With all that being said there are some very powerful biological pharmaceuticals. For example I would not recommend making tea with any plant in the Foxglove (Digitalis purpurea (Scrophulariaceae) family

  20. 20 Bron98 1, May 11, 2009 at 8:23 am

    “I have a good deal of contact with the legal profession ”

    should read medical profession.

  21. 21 blogenfreude 1, May 11, 2009 at 8:51 am

    “Because an invisible man in the sky told me to!”

    Millions have died because of religion, and as long as the insanity continues, many more will die.

  22. 22 Gyges 1, May 11, 2009 at 11:40 am

    Lotta and Mike,

    That reminds me of the Heinlein short story “Waldo.” A large part of my love for Science fiction comes from a two book anthology that my father has. That’s included in there as well as “The Stars My Destination,” “Re-birth,” “Brain Wave,” and “The Weaponshops of Ishtar,” all of which remain some of my favorite literature (I read them about twice a year).

    On a side note, there’s a difference between self-visualization, and the prayers of others.

  23. 23 Mike Spindell 1, May 11, 2009 at 12:26 pm

    “On a side note, there’s a difference between self-visualization, and the prayers of others.”

    Gyges,
    Absolutely correct. While there is much scientific evidence that is supportive of self-visualization, there is little of note on prayer by others. By the way read LK’s Spinrad story:

    http://www.scifi.com/scifiction/classics/classics_archive/spinrad/spinrad1.html

    Possibly I’ve mentioned it before but The Stars My Destination is also one of my all time favorite SF novels. Great book, still viable and featured much precursors of the future. Don’t you see a time shortly in the future where succeeding corporate CEO’s have plastic surgery representative of their products, or founders. The new Microsoft boss being “plastified” to look like Bill Gates for instance and changing his name to same.

    I often used “Tension, Apprehension and Dissension have begun” to relax me for job interviews or unpleasant meetings.

  24. 24 lottakatz 1, May 11, 2009 at 5:05 pm

    Gully Foyle is my name
    And Terra is my nation
    Deep space is my dwelling place
    The stars my destination

    Gyges;

  25. 25 lottakatz 1, May 11, 2009 at 5:15 pm

    The ‘Tab’ button just posted my previous comment! Magic.

    Part 2 I guess:
    Gyges, TSMD one of my first SF reads and it still resides fondly in my memory along with ‘The Demolished Man’. I think my stint as a labor advocate was born in the slums of the corporate dominated worlds of ‘Gladiator at Law’ and ‘The Space Merchants’ by Poul and Kornbluth.

    Fans are Slans :-)

  26. 26 lottakatz 1, May 11, 2009 at 6:15 pm

    Bron(various postings): “compelled to carry a child to term because it is best for the child…” “What if they went to a doctor and he approved their regime?” “If the government gets into the business of saving stupid people from themselves…”

    The govt. already does with things like seat belt and helmet laws. Even so I think those were concessions to insurance companies. I wouldn’t enforce a seat belt law except on minor passengers in a car and wouldn’t ride 2nd seat on a motorcycle unless I had a helmet but wouldn’t make one mandatory for the driver.

    I also wouldn’t trust any doctor to be competent that advocated a cancer treatment consisting of just vitamins and natural foods. We’re talking about religious fanatics that think their delusion will save their son, or won’t for some higher reason or purpose. These are crazy people.

    I’m sorry your daughter is ill; I’m sure that and the limitations you’ve found with conventional medical care (and the relentless arrogance of some of its practitioners) may inform your position to some extent. Similar circumstances with chronic and on ocassion, life threatening illness has informed mine about medical care and that’s no joke.

    I have family members with chronic illness’ that became complicated and life threatening and if I had a dime for every thoughtless, careless, arrogant b+++++d that I have had to deal with I’d be way better off financially than I am now.

    They don’t all know nearly as much as they’d like you to believe and if it comes down to your well being v (some among them) their self-image or indifference then you lose. I have had to make decisions regarding treatment (or the withholding thereof) in the face of what I came to realize was a lack of medical best practices. It’s a scary position to be put in.

    Having said that I do have some fair amount of respect for medical knowledge in the aggregate and would always opt for conventional methods being imposed on people not yet in a position to choose for themselves with whatever non-contravening supplementary treatment the guardians might wish to apply.

    I make an exception for the children of fanatics that I would never apply to the adult fanatics exemplified by this case. Some ideas are like a pernicious infections on the body politic, culture and species in general. If these ideas (and their proponents) are self-limiting through their practice so much the better IMO.

  27. 27 Bron98 1, May 11, 2009 at 7:11 pm

    LOTTAKATZ:

    interesting thoughts. Maybe I do take that into account. Although most of the doctors we have surrounded ourself with are quite good and not arrogant and do provide excellent care. Medical knowledge is just now to the point of seeing some really fantastic breakthroughs in the near future.

    I agree on the insurance angle, that is an unholy cabal (government and insurance) and I think it is one of the reasons our health care is so far out of wak with costs and care. I assume most people on this site to be in favor of national health care, but we ought to start out trying to revamp the insurance companies and how they do business.

  28. 28 pardon me? 1, May 11, 2009 at 7:45 pm

    I must confess to searching online for medical treatment. My ugly mole has been reduced VERY SUBSTANTIALLY by applications of castor oil applied 2x/day. If cut out, I read, scar tissue could obscure any flare up, underlying, or remaining malady. Something like that.

  29. 29 jenni 1, May 23, 2009 at 11:22 am

    not only do these people have to deal with thier 13 year old baby boy dieing of cancer, but now, the government has interviened in thier way of life and COURT ORDERED them to use the SERVICES of a hospital that they dont want to use, they cant even live together as a family. it’s scary what the government is capable of. Chemo therapy is a SERVICE…that you PAY FOR. you dont have to buy it if you dont want it. What the hell? I hope they never find that kid. And i pray to god that he lives a good life while he is here, with cancer. Unfortunatly he has to live in mexico.


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